New Factsheet – What is a CSF Leak?

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We’re pleased to announce the publication of the first in a series of CSFleak.info factsheets – What is a CSF Leak? – which can be downloaded via our downloads section or by clicking on the button below.

Our factsheets provide easy access to key facts and information; they are printable and can be taken with you when you meet with your GP. They are provided in good faith and following careful research, however they cannot be guaranteed error-free and are not a substitute for professional healthcare advice.

Headache Journal: Spontaneous Cerebrospinal Fluid (CSF) Leaks

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Spontaneous cerebrospinal fluid (CSF) leaks typically present with orthostatic headaches. Less commonly, spontaneous CSF leaks can present with other headache types. Nausea, vomiting, hearing disturbances, diplopia, back pain, and dizziness are not uncommon associated symptoms. Although the exact cause of CSF leaks often remains uncertain, some patients may be predisposed due to disorders of connective tissue or spinal meningeal anomalies.

When a spontaneous CSF leak is suspected, head MRI with contrast is ordinarily the first study to obtain. Common abnormalities seen include diffuse dural enhancement, subdural fluid collections, engorged cerebral venous sinuses, and cerebral descent. Important to know is the fact that despite typical clinical features, head MRI may occasionally be unremarkable. In such situations, ancillary studies may help answer whether a CSF leak is present. Radioisotope cisternography and spine MRI are helpful tools in such occurrences. Presently, CT-myelography remains the most reliable test to find the exact spinal CSF leak site. Often, however, the exact CSF leak site is not found.

Read the full article here: http://www.headachejournal.org/view/0/CSFLeaks.html

We’re looking for contributors to CSFleak.info

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As you may have noticed, while the bones of CSFleak.info site are now in place, a lot of content remains to be drafted and added. Our site is run on a purely voluntary basis and as most of us are current leakers, it all takes time.

So, if you’re a CSF leak sufferer, a family member or friend of a sufferer or a medical professional with experience of CSF leaks and intracranial hypotension, we’d love to hear from you and for your to contribution to this site.

While many of those involved have spinal leaks, we want this site to be relevant to cranial leakers as well, so if you have experience of a cranial leak, your input would be invaluable.

We can’t pay wages, but we know that any help you’re able to give will go a long way to helping leakers in the future.

Please contact us if you’d like to help out.