The following is an extract from a blog by Kirstin, a teacher in the USA, who suffered from a CSF Leak. You can read the full article, which goes onto explain symptoms and treatment, here: http://myfirstyearadventure.wordpress.com/2013/07
“So, I wasn’t running around sharing with everyone that I had this medical condition when it happened. My friends who were taking care of me knew, my co-workers knew, my family knew, and that’s about it. I was on the fence about really going into detail here, because really…I am doing much better! And I feel really lucky that it’s something that is healing, that it wasn’t something life threatening, and that I have been able to gain my quality of life back (knock-on-wood) in a relatively short amount of time.
But, this experience is going to be tied to how I approach my first year of teaching. It has changed how I value being able to have the ability to do my job, how I value my life, and the lessons I have learned will effect this little adventure I am embarking on. Also, it IS a rare and largely unknown condition. And if I can help raise some sort of awareness, in case someone out there has a similar headache that isn’t getting diagnosed correctly and is suffering ( doctors and friends/family suspected migraine, brain tumor, meningitis or aneurysm before the correct diagnosis appeared), they know about this possibility. This condition, while rare, is misdiagnosed and thus probably more common than we think. And the misdiagnosis causes more problems, last pain, and financial cost than it should. In fact, I read a study that 0% of cases were diagnosed properly in the first visit to the E.R. WHA!!! And I read numerous stories about people having to fight for themselves at the doctor, that there WAS something wrong, and it wasn’t just “stress” or “anxiety” related. I feel lucky that I had a mom who heard about George Clooney (he’s a leaker! More about this in a later post.) and told me about leaks, a general practitioner who believed my symptoms didn’t add up, and a neurologist who was informed about CSF leaks!
So, what is it?
Well, we all have fluid floating around our brain and spine, that serves as a protective barrier for our thinking cap. And holding this fluid in is a relatively strong tissue called our dura, which is around our brain and spinal region. Well, apparently, my dura had a problem, and tore somewhere. This caused my cerebrospinal fluid to leak out. Which then, caused my headaches because my brain was sitting lower than it should be. Typically, people get these leaks after a spinal tap/lumber puncture, after some sort of trama, or an epidural. I had none of the above (although I have searched every moment of the weeks leading up to my symptoms for a reason…and so far…I did dance super hard two nights before. Could I have danced to the point of causing a leak? Of course I would!). Thus, mine is spontaneous, it just happened. I’m a lucky one!
Without going on and on….if you want more information…”
Keep reading: http://myfirstyearadventure.wordpress.com/2013/07