New Spinal CSF Leak Imaging Factsheet


Imaging Quick Reference Factsheet FB Advert 1

Quick Reference Guide to Spinal CSF Leak Imaging Techniques

We we delighted to have been able to release our brand new factsheet on imaging techniques to coincide with both Day Three of Leak Week UK and global Rare Disease Day 2018.

The guidance provides a brief overview to most of the common imaging techniques that diagnosed or suspected spinal CSF leak sufferers will encounter on their diagnostic and treatment journeys.

It was prepared with significant professional input and should answer many of the common questions that patients have about the different scans that they’re put forward for.

You can download your own copy of the publication by clicking here.


Blue Kelpies for Leak Week UK



Our special thanks go to Scottish Canals for supporting this year’s Leak Week UK by lighting up the wonderful Kelpies for CSF leak awareness.

Thank also to everyone one braved the plummeting temperatures to attend and pose for this fabulous photograph [credit: Ray Michael].

You can read more about Leak Week UK 2018 here:

Leak Week UK 2018: Day One


CSF Leak Association Leak Week 2018

After many months of planning, Leak Week UK has commenced. We’ve got a bumper week of CSF leak-related activity ahead.

You can read our introduction to Leak Week here: 

And catch up on everything that’s happened on Day One here:

Leak Week 2018


Leak Week 2018 Featured Image Banner


What to expect this year.

With a little under three weeks to go, we wanted to tell you all a little bit more about what we have planned for Leak Week UK 2018.

While we don’t want to spoil the surprise and reveal everything in advance, look out for an active week on social media, brimming with facts, information and new resources. You’ll hear from a few new faces, and some old ones too!

As we’re an open organisation run by CSF leak sufferers for CSF leak sufferers, we’ll be announcing new ways to get involved and participate in the work that we’re doing. We’ll be providing an update on recent exciting progress made with our brand new Medical Advisory Committee. And much more.

We’re really excited about this year’s Leak Week. There’s going to be a lot going on from our side, but more than anything, we’d love to have you involved and helping raise awareness of cerebrospinal fluid leaks.

We appreciate that not everyone has the time or ability to help out regularly, but every little really does help and, collaboratively, we can made a huge difference.

Leak Week UK also coincides with global Rare Disease Day and, being a member of Rare Disease UK, we’ll also be linking in with a number of wider initiatives aimed at furthering awareness and care for all rare disease sufferers across the country.

You can keep up-to-date on what we’re up to during Leak Week at our main Leak Week 2018 webpage here:



Five simple ways to get involved in Leak Week


Facebook post get invovled v1

Click to download a full size copy for sharing.



Spread the word. Raise awareness.

If you’ve got a Facebook, Twitter or Instagram account, why not use the graphics below for your profile and banner images for the duration of Leak Week? It’s a great way to spread awareness and get the message across. Facebook shows you how to do that here.

Facebook Leak Week 2018 Profile Image

Click to download image. You can use it as a temporary profile picture in Facebook or Twitter. It’ll probably work with other social media platforms too.


Leak Week 2018 Featured Image Banner

Click to download image. This one is ideal for using as a Facebook profile banner.

If you’re posting and sharing on social media in the run up to and during Leak Week, be sure to use the following hashtags to help the message spread:

#LeakWeek     #CSFleak     #RareDiseaseDay

Leak Week 2017


Leak Week 2017

The first ever spinal cerebrospinal fluid (CSF) leak awareness week is taking place this week, between 26 February and 4 March 2017.

The event is being spearheaded by the Spinal CSF Leak Foundation, but has received global support and will appeal to those with an interest in CSF leaks around the world.

Amongst the events being held, of particular interest to our members will be three LIVE Q&A sessions on 1st, 2nd and 3rd March, featuring top experts in the world of CSF leaks: Dr Wouter Schievink, Dr Peter Kranz and Dr Ian Carroll.


Why not use this graphic as your social media profile picture for Leak Week?

The sessions will be hosted on the Spinal CSF Leak Foundation’s Facebook page and are not to be missed. No sign-up is necessary; just login to Facebook, navigate your way to their page and join in!

For our members in the UK, Ireland and some other European areas, the live sessions will be at 7PM / 19:00 GMT.

Find out more about Leak Week 2017 here:

It would be great if our members could join us in raising awareness of spinal cerebrospinal fluid leaks during Leak Week 2017 by drawing droplets on your hand, arm or face.

Once you’ve got your work of art completed, take a quick picture of it and share it via social media, with the hash tag: #leakweek …and encourage your friends and family to do the same!

The blue drop represents the CSF Leak Association
The purple drop represents the Spinal CSF Leak Foundation
Please spread the Leak Week 2017 message on social media by using the following hash tags: