Stone runner takes on London Marathon raising cash to pay for US treatment

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A TEACHER suffering a debilitating brain condition who launched a fund-raising campaign to pay for treatment abroad has been overwhelmed by offers of help from residents.

Former marathon runner Claire Hubbard, 47, from Eccleshall, has been inundated with calls from people rushing to help her raise the £13,000 needed for treatment in the USA.

The mum-of-two, who taught at St Michael’s First School for much of her 26-year teaching career, suffers with intracranial hypotension, which causes brain or spinal fluid to leak. It means her life has changed dramatically and she has gone from running marathons to having to use a wheelchair to get around. She has a constant headache, has to lie down regularly and suffers body jerks and spasms.

She was diagnosed after a long battle to get medics to believe her and the treatment in America involves scanning the brain to find out exactly where the leak is so it can be treated.

Read more: http://www.staffordshirenewsletter.co.uk/Stone-runner-takes-London-Marathon-ill-Eccleshall/story-20854480-detail/story.html#ixzz2xC1cq8qR

Edinburgh Evening News: GEORGE CLOONEY CSF LEAK PAIN

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PAIN DROVE CLOONEY TO CONSIDER SUICIDE

One of Holywood’s biggest stars, George Clooney, has also spoken of his struggle with it, admitting the pain was so excruciating that he considered suicide.

While Deborah’s leak is in her spine, his was around his brain, and caused CSF fluid to drip out through his nose.

Clooney was injured during the filming of a torture scene in Syriana in 2005, and told TV interviewer Larry King: “I cracked the back of my head and I thought I had an aneurysm because my head hurt so bad.

“So, I got a plane and got out of Morocco and went to Cedars-Sinai [hospital] and I was there for about a week and a half before they figured out what was wrong.”

Bedridden with severe headaches, he later told Rolling Stone magazine: “I was at a point where I thought ‘I can’t exist like this. I can’t actually live’.

“I was lying in a hospital bed with an IV in my arm, unable to move, having these headaches where it feels like you’re having a stroke, and for a short three-week period, I started to think, ‘I may have to do something drastic about this’ . . . but I never thought I’d get there,” he said. “See, I was in a place where I was trying to figure out how to survive.”

Although he never attempted to take his own life, he began to drink heavily until the symptoms were finally relieved by surgery – but still suffers from bad headaches.

Read the article here: http://www.edinburghnews.scotsman.com/news/health/health-how-spinal-condition-lead-to-crippling-headaches-1-2150059

We’re looking for contributors to CSFleak.info

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As you may have noticed, while the bones of CSFleak.info site are now in place, a lot of content remains to be drafted and added. Our site is run on a purely voluntary basis and as most of us are current leakers, it all takes time.

So, if you’re a CSF leak sufferer, a family member or friend of a sufferer or a medical professional with experience of CSF leaks and intracranial hypotension, we’d love to hear from you and for your to contribution to this site.

While many of those involved have spinal leaks, we want this site to be relevant to cranial leakers as well, so if you have experience of a cranial leak, your input would be invaluable.

We can’t pay wages, but we know that any help you’re able to give will go a long way to helping leakers in the future.

Please contact us if you’d like to help out.

Stone mum bidding to raise cash for brain treatment in the USA with the help of pupils

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GENEROUS Stone pupils and the family of a teacher suffering a debilitating brain condition have launched a major fund-raising campaign to pay for treatment abroad. Former marathon runner Claire Hubbard, 47, who lives in Eccleshall, used to work at St Michael’s First School in Stone.

Her identical twin sister Louise Walmsley is also a teacher at St Michael’s.

But four years ago the mum-of-two began suffering excruciating headaches and collapsed on the floor.She spent much of 2010 having to lie down and was in and out of hospital having tests to find the cause of her pain.

As a result she began suffering with Postural Ortho Static Tachycardia Syndrome, which causes fainting and light-headedness. She has struggled to stand up without her body jerking or suffering a seizure.

Read more: http://www.staffordshirenewsletter.co.uk/undefined-headline/story-20803344-detail/story.html#ixzz2wp1tLDDu

Family launch £13k appeal to send Eccleshall mum to U.S. for life-changing op

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DESPERATELY-ILL Claire Hubbard’s family have launched a fund-raising appeal to help pay for a life-changing operation in the U.S. – to stop her brain from ‘sinking’.

The 47-year-old’s condition has baffled doctors in this country and her only hope is to meet with experts overseas.

Now she needs to raise £13,000 to cover the cost of a specialist brain scan and treatment.

Read more: http://www.stokesentinel.co.uk/Family-launch-pound-13k-appeal-send-Eccleshall/story-20825954-detail/story.html#ixzz2wp0hIvtz