Leak Week 2017

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Leak Week 2017

The first ever spinal cerebrospinal fluid (CSF) leak awareness week is taking place this week, between 26 February and 4 March 2017.

The event is being spearheaded by the Spinal CSF Leak Foundation, but has received global support and will appeal to those with an interest in CSF leaks around the world.

Amongst the events being held, of particular interest to our members will be three LIVE Q&A sessions on 1st, 2nd and 3rd March, featuring top experts in the world of CSF leaks: Dr Wouter Schievink, Dr Peter Kranz and Dr Ian Carroll.

leakweek-profile-pic-uk-version-2

Why not use this graphic as your social media profile picture for Leak Week?

The sessions will be hosted on the Spinal CSF Leak Foundation’s Facebook page and are not to be missed. No sign-up is necessary; just login to Facebook, navigate your way to their page and join in!

For our members in the UK, Ireland and some other European areas, the live sessions will be at 7PM / 19:00 GMT.

Find out more about Leak Week 2017 here: www.spinalcsfleak.org/leak-week-2017

It would be great if our members could join us in raising awareness of spinal cerebrospinal fluid leaks during Leak Week 2017 by drawing droplets on your hand, arm or face.

Once you’ve got your work of art completed, take a quick picture of it and share it via social media, with the hash tag: #leakweek …and encourage your friends and family to do the same!

The blue drop represents the CSF Leak Association
The purple drop represents the Spinal CSF Leak Foundation
Please spread the Leak Week 2017 message on social media by using the following hash tags:

#LEAKWEEK      #UPRIGHTHEADACHE      #CSFLEAK

Stone runner takes on London Marathon raising cash to pay for US treatment

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A TEACHER suffering a debilitating brain condition who launched a fund-raising campaign to pay for treatment abroad has been overwhelmed by offers of help from residents.

Former marathon runner Claire Hubbard, 47, from Eccleshall, has been inundated with calls from people rushing to help her raise the £13,000 needed for treatment in the USA.

The mum-of-two, who taught at St Michael’s First School for much of her 26-year teaching career, suffers with intracranial hypotension, which causes brain or spinal fluid to leak. It means her life has changed dramatically and she has gone from running marathons to having to use a wheelchair to get around. She has a constant headache, has to lie down regularly and suffers body jerks and spasms.

She was diagnosed after a long battle to get medics to believe her and the treatment in America involves scanning the brain to find out exactly where the leak is so it can be treated.

Read more: http://www.staffordshirenewsletter.co.uk/Stone-runner-takes-London-Marathon-ill-Eccleshall/story-20854480-detail/story.html#ixzz2xC1cq8qR

Stone mum bidding to raise cash for brain treatment in the USA with the help of pupils

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GENEROUS Stone pupils and the family of a teacher suffering a debilitating brain condition have launched a major fund-raising campaign to pay for treatment abroad. Former marathon runner Claire Hubbard, 47, who lives in Eccleshall, used to work at St Michael’s First School in Stone.

Her identical twin sister Louise Walmsley is also a teacher at St Michael’s.

But four years ago the mum-of-two began suffering excruciating headaches and collapsed on the floor.She spent much of 2010 having to lie down and was in and out of hospital having tests to find the cause of her pain.

As a result she began suffering with Postural Ortho Static Tachycardia Syndrome, which causes fainting and light-headedness. She has struggled to stand up without her body jerking or suffering a seizure.

Read more: http://www.staffordshirenewsletter.co.uk/undefined-headline/story-20803344-detail/story.html#ixzz2wp1tLDDu

Family launch £13k appeal to send Eccleshall mum to U.S. for life-changing op

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DESPERATELY-ILL Claire Hubbard’s family have launched a fund-raising appeal to help pay for a life-changing operation in the U.S. – to stop her brain from ‘sinking’.

The 47-year-old’s condition has baffled doctors in this country and her only hope is to meet with experts overseas.

Now she needs to raise £13,000 to cover the cost of a specialist brain scan and treatment.

Read more: http://www.stokesentinel.co.uk/Family-launch-pound-13k-appeal-send-Eccleshall/story-20825954-detail/story.html#ixzz2wp0hIvtz