Upcoming Fundraising Events


We’re delighted to announce that Kate Hubbard and Ray Michael are organising fundraising events for CSF Leaks.

Kate and friends are doing a gruelling Tough Mudder to raise funds for the CSF Leak Association. You can find out more information here: www.totalgiving.co.uk/mypage/csfleaktoughmudder

Ray has organised an epic motorbike tour round Scotland to raise funds and awareness for CSF leaks. You can find out more about his event here: www.facebook.com/events/177698689248034

Best of luck to all involved and many thanks for all of your hard work and support.

Eccleshall mum Claire Hubbard sees improvement in her condition


AN ECCLESHALL mum suffering a debilitating brain condition is hoping she may finally have found a cure for her condition. Claire Hubbard, who suffers with intracranial hypotension which causes brain or spinal fluid to leak, has been raising £13,000 for pioneering treatment in the USA.

The teacher and former marathon runner has to use a wheelchair to get around, has a constant headache and has to lie down regularly and suffers body jerks and spasms. She had been hoping to travel abroad to get treatment to scan the brain and find out exactly where the leak was so it could be treated…

…Claire began writing a blog to share her story and let all her supporters know exactly how she was. And she has now under gone blood patching, which involved having injections in her spine to close leaks in her spine.

She is now recovering at home and although it is too early to say how successful the treatment has been she has so far noticed a major improvement. Claire may still travel to the USA for further treatment but so far has been thrilled with the results.

Read more here: http://www.staffordshirenewsletter.co.uk/Eccleshall-mum-Claire-Hubbard-sees-improvement/story-21255307-detail/story.html