Headache Journal: Spontaneous Cerebrospinal Fluid (CSF) Leaks

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Spontaneous cerebrospinal fluid (CSF) leaks typically present with orthostatic headaches. Less commonly, spontaneous CSF leaks can present with other headache types. Nausea, vomiting, hearing disturbances, diplopia, back pain, and dizziness are not uncommon associated symptoms. Although the exact cause of CSF leaks often remains uncertain, some patients may be predisposed due to disorders of connective tissue or spinal meningeal anomalies.

When a spontaneous CSF leak is suspected, head MRI with contrast is ordinarily the first study to obtain. Common abnormalities seen include diffuse dural enhancement, subdural fluid collections, engorged cerebral venous sinuses, and cerebral descent. Important to know is the fact that despite typical clinical features, head MRI may occasionally be unremarkable. In such situations, ancillary studies may help answer whether a CSF leak is present. Radioisotope cisternography and spine MRI are helpful tools in such occurrences. Presently, CT-myelography remains the most reliable test to find the exact spinal CSF leak site. Often, however, the exact CSF leak site is not found.

Read the full article here: http://www.headachejournal.org/view/0/CSFLeaks.html

Health: How spinal condition lead to crippling headaches

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Struggling off the bus in agony, Deborah Ogg barely knew what was happening.

She had never suffered from headaches, but suddenly she was in such excruciating pain that she had to lie down in the street, utterly overwhelmed.

Her worried partner Peter looked on, helpless, and even the taxi driver he summoned offered to take them straight to hospital. But Deborah, 40, hating to make a fuss, insisted on going home to bed.

“I felt like somebody had hit me over the head with an iron bar,” she recalls, “It was massive pain.”

The pharmacist recommended migraine pills, but they didn’t help. “I tried getting up to go to the toilet but as soon as I got up the pain was even worse and I was on my knees, I just crumpled,” she says.

It was April 1 last year, and the start of a long and painful journey with what she eventually discovered was a rare condition called cerebrospinal fluid (CSF) leak.

Affecting around one person in 50,000, it occurs when the fluid, which cushions the brain and spine, leaks out through a hole in its protective sac. This results in a drop in pressure, so that the brain can no longer float in fluid.

The brain cannot feel pain, but the resulting “brain sag” pulls on tendons and muscles across the head, causing extreme pain, which is slightly relieved when sufferers lie down.

It is most common after epidurals or spinal operations, but in some cases, such as Deborah’s, occurs spontaneously, which makes treatment harder, because the location of the leak is not known.

Read the full article here: http://www.edinburghnews.scotsman.com/news/health/health-how-spinal-condition-lead-to-crippling-headaches-1-2150059

Stone runner takes on London Marathon raising cash to pay for US treatment

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A TEACHER suffering a debilitating brain condition who launched a fund-raising campaign to pay for treatment abroad has been overwhelmed by offers of help from residents.

Former marathon runner Claire Hubbard, 47, from Eccleshall, has been inundated with calls from people rushing to help her raise the £13,000 needed for treatment in the USA.

The mum-of-two, who taught at St Michael’s First School for much of her 26-year teaching career, suffers with intracranial hypotension, which causes brain or spinal fluid to leak. It means her life has changed dramatically and she has gone from running marathons to having to use a wheelchair to get around. She has a constant headache, has to lie down regularly and suffers body jerks and spasms.

She was diagnosed after a long battle to get medics to believe her and the treatment in America involves scanning the brain to find out exactly where the leak is so it can be treated.

Read more: http://www.staffordshirenewsletter.co.uk/Stone-runner-takes-London-Marathon-ill-Eccleshall/story-20854480-detail/story.html#ixzz2xC1cq8qR

We’re looking for contributors to CSFleak.info

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As you may have noticed, while the bones of CSFleak.info site are now in place, a lot of content remains to be drafted and added. Our site is run on a purely voluntary basis and as most of us are current leakers, it all takes time.

So, if you’re a CSF leak sufferer, a family member or friend of a sufferer or a medical professional with experience of CSF leaks and intracranial hypotension, we’d love to hear from you and for your to contribution to this site.

While many of those involved have spinal leaks, we want this site to be relevant to cranial leakers as well, so if you have experience of a cranial leak, your input would be invaluable.

We can’t pay wages, but we know that any help you’re able to give will go a long way to helping leakers in the future.

Please contact us if you’d like to help out.

Stone mum bidding to raise cash for brain treatment in the USA with the help of pupils

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GENEROUS Stone pupils and the family of a teacher suffering a debilitating brain condition have launched a major fund-raising campaign to pay for treatment abroad. Former marathon runner Claire Hubbard, 47, who lives in Eccleshall, used to work at St Michael’s First School in Stone.

Her identical twin sister Louise Walmsley is also a teacher at St Michael’s.

But four years ago the mum-of-two began suffering excruciating headaches and collapsed on the floor.She spent much of 2010 having to lie down and was in and out of hospital having tests to find the cause of her pain.

As a result she began suffering with Postural Ortho Static Tachycardia Syndrome, which causes fainting and light-headedness. She has struggled to stand up without her body jerking or suffering a seizure.

Read more: http://www.staffordshirenewsletter.co.uk/undefined-headline/story-20803344-detail/story.html#ixzz2wp1tLDDu

Family launch £13k appeal to send Eccleshall mum to U.S. for life-changing op

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DESPERATELY-ILL Claire Hubbard’s family have launched a fund-raising appeal to help pay for a life-changing operation in the U.S. – to stop her brain from ‘sinking’.

The 47-year-old’s condition has baffled doctors in this country and her only hope is to meet with experts overseas.

Now she needs to raise £13,000 to cover the cost of a specialist brain scan and treatment.

Read more: http://www.stokesentinel.co.uk/Family-launch-pound-13k-appeal-send-Eccleshall/story-20825954-detail/story.html#ixzz2wp0hIvtz

 

A mother-of-three is lucky to be alive after doctors failed to diagnose that the clear liquid streaming from her nose was a brain fluid leak

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A mother-of-three is lucky to be alive after doctors failed to diagnose that the clear liquid streaming from her nose was a brain fluid leak.

Aundrea Aragon, 35, made several trips to her doctor over a four-month period but was sent home with nasal sprays after being told it was simply allergies.

Mrs Aragon finally discovered something was seriously wrong last month after being forced to go to the emergency room with liquid pouring from her nose. She was diagnosed with a cerebrospinal fluid leak from two cracks in the back of her sphenoid sinus, a potentially fatal condition.

Read more: http://www.dailymail.co.uk/news/article-2242332/Cerebrospinal-fluid-leak-Woman-dies-brain-fluid-leak-months-Arizona.html#ixzz2wuCFk4QA