New Factsheet – What is a CSF Leak?

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We’re pleased to announce the publication of the first in a series of CSFleak.info factsheets – What is a CSF Leak? – which can be downloaded via our downloads section or by clicking on the button below.

Our factsheets provide easy access to key facts and information; they are printable and can be taken with you when you meet with your GP. They are provided in good faith and following careful research, however they cannot be guaranteed error-free and are not a substitute for professional healthcare advice.

Headache Journal: Spontaneous Cerebrospinal Fluid (CSF) Leaks

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Spontaneous cerebrospinal fluid (CSF) leaks typically present with orthostatic headaches. Less commonly, spontaneous CSF leaks can present with other headache types. Nausea, vomiting, hearing disturbances, diplopia, back pain, and dizziness are not uncommon associated symptoms. Although the exact cause of CSF leaks often remains uncertain, some patients may be predisposed due to disorders of connective tissue or spinal meningeal anomalies.

When a spontaneous CSF leak is suspected, head MRI with contrast is ordinarily the first study to obtain. Common abnormalities seen include diffuse dural enhancement, subdural fluid collections, engorged cerebral venous sinuses, and cerebral descent. Important to know is the fact that despite typical clinical features, head MRI may occasionally be unremarkable. In such situations, ancillary studies may help answer whether a CSF leak is present. Radioisotope cisternography and spine MRI are helpful tools in such occurrences. Presently, CT-myelography remains the most reliable test to find the exact spinal CSF leak site. Often, however, the exact CSF leak site is not found.

Read the full article here: http://www.headachejournal.org/view/0/CSFLeaks.html

Edinburgh Evening News: GEORGE CLOONEY CSF LEAK PAIN

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PAIN DROVE CLOONEY TO CONSIDER SUICIDE

One of Holywood’s biggest stars, George Clooney, has also spoken of his struggle with it, admitting the pain was so excruciating that he considered suicide.

While Deborah’s leak is in her spine, his was around his brain, and caused CSF fluid to drip out through his nose.

Clooney was injured during the filming of a torture scene in Syriana in 2005, and told TV interviewer Larry King: “I cracked the back of my head and I thought I had an aneurysm because my head hurt so bad.

“So, I got a plane and got out of Morocco and went to Cedars-Sinai [hospital] and I was there for about a week and a half before they figured out what was wrong.”

Bedridden with severe headaches, he later told Rolling Stone magazine: “I was at a point where I thought ‘I can’t exist like this. I can’t actually live’.

“I was lying in a hospital bed with an IV in my arm, unable to move, having these headaches where it feels like you’re having a stroke, and for a short three-week period, I started to think, ‘I may have to do something drastic about this’ . . . but I never thought I’d get there,” he said. “See, I was in a place where I was trying to figure out how to survive.”

Although he never attempted to take his own life, he began to drink heavily until the symptoms were finally relieved by surgery – but still suffers from bad headaches.

Read the article here: http://www.edinburghnews.scotsman.com/news/health/health-how-spinal-condition-lead-to-crippling-headaches-1-2150059

A mother-of-three is lucky to be alive after doctors failed to diagnose that the clear liquid streaming from her nose was a brain fluid leak

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A mother-of-three is lucky to be alive after doctors failed to diagnose that the clear liquid streaming from her nose was a brain fluid leak.

Aundrea Aragon, 35, made several trips to her doctor over a four-month period but was sent home with nasal sprays after being told it was simply allergies.

Mrs Aragon finally discovered something was seriously wrong last month after being forced to go to the emergency room with liquid pouring from her nose. She was diagnosed with a cerebrospinal fluid leak from two cracks in the back of her sphenoid sinus, a potentially fatal condition.

Read more: http://www.dailymail.co.uk/news/article-2242332/Cerebrospinal-fluid-leak-Woman-dies-brain-fluid-leak-months-Arizona.html#ixzz2wuCFk4QA