Leak Week 2017

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Leak Week 2017

The first ever spinal cerebrospinal fluid (CSF) leak awareness week is taking place this week, between 26 February and 4 March 2017.

The event is being spearheaded by the Spinal CSF Leak Foundation, but has received global support and will appeal to those with an interest in CSF leaks around the world.

Amongst the events being held, of particular interest to our members will be three LIVE Q&A sessions on 1st, 2nd and 3rd March, featuring top experts in the world of CSF leaks: Dr Wouter Schievink, Dr Peter Kranz and Dr Ian Carroll.

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Why not use this graphic as your social media profile picture for Leak Week?

The sessions will be hosted on the Spinal CSF Leak Foundation’s Facebook page and are not to be missed. No sign-up is necessary; just login to Facebook, navigate your way to their page and join in!

For our members in the UK, Ireland and some other European areas, the live sessions will be at 7PM / 19:00 GMT.

Find out more about Leak Week 2017 here: www.spinalcsfleak.org/leak-week-2017

It would be great if our members could join us in raising awareness of spinal cerebrospinal fluid leaks during Leak Week 2017 by drawing droplets on your hand, arm or face.

Once you’ve got your work of art completed, take a quick picture of it and share it via social media, with the hash tag: #leakweek …and encourage your friends and family to do the same!

The blue drop represents the CSF Leak Association
The purple drop represents the Spinal CSF Leak Foundation
Please spread the Leak Week 2017 message on social media by using the following hash tags:

#LEAKWEEK      #UPRIGHTHEADACHE      #CSFLEAK

New CSF Leak Journal Articles

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We’ve added three additional journal articles to our downloads section.

Two articles about the use of gadolinium in CSF Leak detection:

One review paper by Dr Wouter Schievink of Cedars-Sinai Hospital, California:

New CSF Leak Videos from Cedars-Sinai

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Check out the new series of CSF Leak videos, featuring Dr Wouter Schievink from Cedars-Sinai Hospital, California, one of the world’s foremost specialists in Cerebrospinal Fluid Leak diagnosis and treatment.

The videos can be found in our ‘About CSF Leaks’ section or by clicking here.

Cedars-Sinai neurosurgeon successfully performs CSF repair surgery on patient

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When Elizabeth “Beth” Johnson stood up from working at her computer Oct. 28, she noticed “a kind of funny feeling” in the back of her neck. By Nov. 2, the sensation had become an excruciating headache that came on whenever she tried to stand or sit upright.

Her symptoms and MRIs suggested that a hole had developed in the dura, the lining around her spinal cord. With the loss of cerebrospinal fluid – which circulates around the brain and spinal cord – her brain shifted and sagged away from her skull when she tried to stand, causing severe positional headaches and eventually leading to periods of confusion.

After two attempts at another neurosurgical center failed to patch the hole, Johnson, who lives 13 miles from Santa Fe, N.M., came to Cedars-Sinai, where Wouter Schievink, MD, director of the Microvascular Neurosurgery Program in the Department of Neurosurgery, surgically repaired the tear.

Schievink, one of the world’s most experienced neurosurgeons for this diagnosis, said Johnson’s tear was extensive but no larger than many he has treated. It was, however, located on the front side of her spinal cord, making surgical access more challenging and the repair procedure more delicate.

When Johnson – who describes herself as a fast-moving, quick-thinking Type A personality – felt the strange sensation in her neck, she didn’t slow down at first. But as symptoms got worse, she wondered if she should go to an urgent care center. Friends surmised she was just stressed out and recommended therapeutic massage. But by Nov. 5, no longer able to sit or stand without pain, she saw her primary care physician, who immediately sent her for MRIs that showed she had spontaneous intracranial hypotension – a defect in the dura had opened, allowing spinal fluid to leak.

Two days later, Johnson was flown by air ambulance to another neurosurgical center, where doctors used injections of her own blood to try to seal the tear – the first line of treatment for most leaks. Although she was discharged to go home Nov. 15, Johnson and her partner of 14 years, Charlotte “Char” Schnepf, quickly realized the blood patches hadn’t held.

“When I called the doctors, they said to come back and have a third blood patch. They said sometimes people need 10 of them. But this didn’t make sense to me,” said Johnson, manager of a family compound and a life transitions coach.

At the suggestion of a client and friend who had found Schievink’s name online, Johnson called Cedars-Sinai; Schnepf wrote a letter, collected copies of the original MRIs and shipped them overnight to Schievink.

“He looked at my MRIs and called me the next day,” recalled Johnson, who again was flown by air ambulance, but this time to Los Angeles Monday, Dec. 2. She met Schievink that afternoon and began undergoing a series of diagnostic procedures. They confirmed the defect’s location at the front of the spine and showed a calcium deposit on a disc, which may have contributed to the tear.

Read the full article here: http://www.news-medical.net/news/20140228/Cedars-Sinai-neurosurgeon-successfully-performs-CSF-repair-surgery-on-patient.aspx