All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.
CSF Leak Association News
- CSF Leak Patient Survey March 2021
- Website User Survey 2021
- CSF Leak Association Patient Impact Survey Report 2020
- Changes on the Board of Trustees
- Annual General Meeting 2020
- Covid-19 Patient Impact Survey 2020
- Updated Medical Accommodations Card for CSF Leaks
- CSF Leak Volunteers’ Week 2020
- Coronavirus (COVID-19) & Cerebrospinal Fluid (CSF) Leaks
- CSF Leaks at the London Marathon 2020
- Calling all Junior Doctors: Intracranial Hypotension Symposium 2020 Attendance Bursary
- Hospital Saturday Fund Grant
- Annual General Meeting 2019 (Agenda & Papers)
- Annual General Meeting 2019
- CSF Leak Association Christmas eCards 2018
- Changes on the Board of Trustees
- Annual General Meeting 2018
- We’re Looking for Online Community Leaders
- Leak Week 2018 Survey
- Post-Epidural Blood Patch Precautions Guidance
- Medical Advisory Committee Update: March 2018
- New Spinal CSF Leak Imaging Factsheet
- Blue Kelpies for Leak Week UK
- Leak Week UK 2018: Day One
- Follow us on Instagram
- Leak Week 2018
- Leaker Life Newsletter – Issue 7 – Winter 2017
- Headaches and Spinal Fluid Leaks – An Emerging Problem
- Measuring Opening Pressure & Intracranial Pressure
- CSF Leak Association Wristbands
- Upright Headache? Think CSF Leak!
- Annual General Meeting 2017
- Leak Week 2017
- The CSF Leak Association is now open for membership!
- Leaker Life Newsletter – Winter 2016
- CSF Leak Android App
- Cerebrospinal Fluid Leaks: An Overview
- Measuring Opening Pressure on Lumbar Puncture
- Can you help with our Business Plan?
- CSF Leak Medical Accommodations Card
- Tough Mudder North West
- Partnership with Inspire Spinal CSF Leak Community
- Hollyoaks’ Duncan James suffers CSF Leak
- Consultation on Social Security in Scotland
- CSF Leak Association Shop & Merchandise
- The Kilt Ride 2016
- Upcoming Fundraising Events
- Charity Update: We’re now an official charity!
- Charity and website news
- Map of CSF Leakers
- Spontaneous intracranial hypotension: presentation, diagnosis, and treatment
- Journal Article: Dynamic CT Myelography
- New Factsheet: Example Medical Report for CT Myelogram
- Headache secondary to intracranial hypotension
- New CSF Leak Journal Articles
- Featured Blog: What is a CSF Leak?
- Travelling to the North Carolina for CSF Leak Treatment
- New CSF Leak Videos from Cedars-Sinai
- CSF Leak Story: No doctor could diagnose my strange affliction – so I did it myself
- New Factsheet: CSF Leak Terminology
- Alphabetical Guide to CSF Leak Terminology
- Living with Intracranial Hypotension: Claire Hubbard’s Story
- Eccleshall mum Claire Hubbard sees improvement in her condition
- Claire Hubbard – My Life with Intracranial Hypotension
- Anonymous donor gives £10k to fund Eccleshall woman Claire Hubbard’s vital brain scan
- CSF Leak Questions Answered by Dr Schievink
- Cedars-Sinai neurosurgeon successfully performs CSF repair surgery on patient
- Eilidh’s Story – From the Perspective of a CSF Leakers’ Wife
- The Real Housewives of Orange County: Vicki shares that Briana is back in the hospital
- New Factsheet – What is a CSF Leak?
- Spinal Meningeal Diverticula in Spontaneous Intracranial Hypotension
- Diagnostic Criteria for Spontaneous Spinal CSF Leaks and Intracranial Hypotension
- Role of MR Myelography with Intrathecal Gadolinium in Localization of Spinal CSF Leaks
- Detection of CSF Leak in Spinal CSF Leak Syndrome Using MR Myelography
- The Value of Changing Position in the Detection of CSF Leakage
- Headache Journal: Spontaneous Cerebrospinal Fluid (CSF) Leaks
- Health: How spinal condition lead to crippling headaches
- Stone runner takes on London Marathon raising cash to pay for US treatment
- Edinburgh Evening News: GEORGE CLOONEY CSF LEAK PAIN
- We’re looking for contributors to CSFleak.info
- Stone mum bidding to raise cash for brain treatment in the USA with the help of pupils
- Family launch £13k appeal to send Eccleshall mum to U.S. for life-changing op
- New Website – Under Construction
- A mother-of-three is lucky to be alive after doctors failed to diagnose that the clear liquid streaming from her nose was a brain fluid leak
CSF Leaks in the News
- Hollyoaks’ Duncan James suffers CSF Leak
- Eccleshall mum Claire Hubbard sees improvement in her condition
- Anonymous donor gives £10k to fund Eccleshall woman Claire Hubbard’s vital brain scan
- Cedars-Sinai neurosurgeon successfully performs CSF repair surgery on patient
- The Real Housewives of Orange County: Vicki shares that Briana is back in the hospital
- Health: How spinal condition lead to crippling headaches
- Stone runner takes on London Marathon raising cash to pay for US treatment
- Edinburgh Evening News: GEORGE CLOONEY CSF LEAK PAIN
- Stone mum bidding to raise cash for brain treatment in the USA with the help of pupils
- Family launch £13k appeal to send Eccleshall mum to U.S. for life-changing op
- A mother-of-three is lucky to be alive after doctors failed to diagnose that the clear liquid streaming from her nose was a brain fluid leak