Leak Week UK 2018: Day Three

To read the daily digest for Day Three please click here, or scroll down to see the day’s key graphics and publications.

FB Raising awareness CSF Leak Week Day 3 - FB Diagnosis


CSF Leak Diagnosis & Imaging

We’ve published a brand new factsheet. It’s a  Quick Reference Guide to Imaging Techniques for Spinal CSF Leaks.

CSF Leak Imaging Quick Reference Guide Fact sheet

Download your copy by clicking on the image above.

Rare Disease Day 2018

Rare Disease Day & Leek Week UK

Leak Week UK coincides with Rare Disease Day. The CSF Leak Association is proud to work in partnership with other third-sector organisations and groups to support those with rare diseases and secure improvements in care and treatment. That’s why we’re a member of the Scottish Parliament’s Cross-Party Group on Rare, Genetics & Undiagnosed Conditions.

you can find out about other Rare Diseases at the Rare Disease Day website: www.rarediseaseday.org


CSF Leaker Profile: Robin Palmer Hosking

Click here to read about Robin’s experiences of a life with spinal CSF leak.

Facebook leaker story links_robin


CSF Leaker Short Video:

It’s Poll Walker’s turn today to talk about her Life with a CSF Leak.


Bite-sized Facts

Each day during Leak Week, we publish some bite-sized facts. Here are today’s facts:

CSF Leak Fact 5 - CSF leaks can be linked to EDS & Marfan Syndromes

CSF Leak Fact 12 - Spinal Leaks not found in 50% of Cases