Leak Week UK 2018, which coincides with Rare Disease Day 2018, is the annual event where cerebrospinal leak sufferers from across the country come together to raise awareness of CSF leaks, at home, work and abroad.
It’s a week packed full of CSF leak information sharing and awareness raising, so please join us and spread the word! Throughout the next seven days, expect to learn new facts, download new advice & guidance and hear some real life experiences of what it is like to live with a CSF leak.
We’ll be adding information and resources to these pages as the week progresses, so please check back regularly. The bullet point list of links will expand as we add news, posts, publications and new initiatives each day. We’d encourage you to bookmark this page and come back regularly!
- Introduction to Leak Week UK 2018
- Day One: What is a CSF Leak?
- Day Two: Symptoms
- Day Three: Diagnosis & Imaging
- Day Four: Treatment
- Day Five: Aftercare
- Day Six: Living with a CSF Leak
- Day Seven: Getting Involved & Looking Forward
Blue has been the colour of CSFleak.info since 2014; it’s also the universal colour for water, which is the main component of CSF. It therefore made perfect sense for blue to become the established colour of CSF leak awareness in the UK.
To get this year’s Leak Week started with a fabulous flourish, we’re thrilled to announce that, in partnership with our friends at Scottish Canals, the world-famous Kelpies monument will be lit up in blue on 26th February 2018 especially for CSF leaks.
We’d love if for all of our supporters to wear blue on that day and share photos across social media – using the hashtags #LeakWeek #CSFleak and #WearBlueToo – and encourage friends and family to do the same.
You can use our official Facebook Frame to add a #WearBlueToo overlay to your profile image. You can also use it on any media that you add via Facebook’s mobile apps, so why not take a photo or video of you wearing blue, add a Facebook frame and share it to our Facebook page?
Will you #WearBlueToo?!
Please feel free to download our resources and publications, and share with your friends, family and colleagues.
We thought that these ones may be of particular interest:
- Cerebrospinal Fluid Leaks: An Overview: click here
- Our symptom-checker & infographic: click here
- Our brand new Quick Reference Guide to Imaging Techniques for Spinal CSF Leaks: click here
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To fundraise via Facebook, please visit our page and click on the ‘fundraisers’ link.