CSF Leak Focus Groups

We are a membership organisation and an organisation run entirely by volunteers; people are at the heart of the CSF Leak Association.

CSFLA Leaflet on Table with HandTo compliment our future projects, we are looking for expressions of interest from UK residents for membership of our new focus groups. The groups will look at different aspects of our work and aims, such as new and reviewed publications and website content prior to it being published.

At this time, we’re looking for people who fall within one or more of the following categories:

  • Current CSF leaker sufferer
  • Former CSF leak sufferer
  • Friends and family of CSF leak sufferers (current or former)
  • Members of the public (non-medical professionals) with an interest in CSF leaks

An expression of interest does not commit you to joining a group nor does it obligate us to select you for any specific group; different groups will be established for different purposes, so we’ll try to match groups with people’s interest and background as best as we can

Focus group members would be expected to be involved for a minimum of a year. Membership will involve a bit of reading and feedback through email correspondence and Skype calls, but should not be onerous. As all of our trustees have experience of CSF leaks, we appreciate the need to be flexible and respond to health limitations.

Register an Interest

If you would be interested in finding more about the CSF Leak Association’s focus groups, please complete the short form below. We’ll acknowledge your expression of interest and get in touch again when the group(s) are being set up.

Please note: all fields are mandatory and you cannot submit the form until they have been completed.