This is a wonderful opportunity at a global event to bring attention to cerebrospinal fluid leaks, focus the spotlight on our cause and raise much-needed funds.
Representing us on this challenge will be seasoned runner, Claire Secker, whose husband, Russell, experienced a CSF leak in 2019. Both he and Claire have got stuck in with the charity and are determined to use their experiences and skills to help others.
Here’s Russell talking a little about his journey:
“Prior to May 2019, I was suffering from a severe CSF Leak. I developed frontotemporal dementia, and was descending into madness. My wife Claire cared for me as I became less and less able to function, advocated for me to the medical profession, and found a brilliant neurosurgeon in Los Angeles who operated on my spine and fixed my leak. Dr Schievink And his team saved my life.
When we had our discharge meeting with Dr Schievink a week after my surgery in May 2019, he told us that most CSF Leak “survivors” don’t stay involved with the leaker community once their illness has been fixed. We both told him that going forward we wanted to help to support sufferers and help to educate the medical profession in the UK.”
This is a wonderful opportunity for the CSF leak community and we’re determined to capitalise on it to the max. Please help us to raise awareness of CSF leaks and spread the word by supporting Claire today.
We hope that you will tell all of your friends and family and share the fundraising page far and wide. Whilst daily living is a marathon in itself for a great many CSF leak sufferers, we can be there in spirit with Claire, willing her along!
Send Claire and Russell a message of support, spread the word and help raise vital funds for CSF leaks here: https://uk.virginmoneygiving.com/ClaireSecker1
#CSFleaks #SpinalCSFleak #IntracranialHypotension #LondonMarathon #LondonMarathon2020