New CSF Leak Journal Articles

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We’ve added three additional journal articles to our downloads section.

Two articles about the use of gadolinium in CSF Leak detection:

One review paper by Dr Wouter Schievink of Cedars-Sinai Hospital, California:

New CSF Leak Videos from Cedars-Sinai

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Check out the new series of CSF Leak videos, featuring Dr Wouter Schievink from Cedars-Sinai Hospital, California, one of the world’s foremost specialists in Cerebrospinal Fluid Leak diagnosis and treatment.

The videos can be found in our ‘About CSF Leaks’ section or by clicking here.

New Factsheet: CSF Leak Terminology

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We’re pleased to announce the publication our third CSFleak.info factsheet – Quick Reference Guide to CSF Leak Terminology – which can be downloaded via our downloads section or by clicking on the button below.

Our factsheets provide easy access to key facts and information; they are printable and can be taken with you when you meet with your GP. They are provided in good faith and following careful research, however they cannot be guaranteed error-free and are not a substitute for professional healthcare advice.

Alphabetical Guide to CSF Leak Terminology

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Struggling with phrases and acronyms?

Health-related terminology can be confusing at times, particularly to those without a medical background, with limited experience dealing with doctors or hospitals or who are new to a particular condition or illness.

In order to assist, we have prepared an alphabetical list of some of the most commonly used CSF leak terminology.

Check out our new alphabetical guide to CSF leak terminology.

CSF Leak Questions Answered by Dr Schievink

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We’re pleased to announce that with the kind permission of the CSFleak.org Forum, we are able to publish a recent Questions and Answers session with leading CSF leak expert, Dr Wouter Schievink. The questions were posted by members of the CSFleak.org forum during January 2014 and answers were provided on 4 April 2014. We are deeply grateful to the administrators of the forum for arranging and managing the Q&A session and for making the information available.

Dr Schievink is one of the world’s foremost experts on CSF leaks and Spontaneous Hypertension. Originally from The Netherlands, but now practicing Cedars-Sinai Hospital in California, he has conducted a number of studies into the diagnosis and treatment of CSF leaks and many specialists in the UK base their approach on his work.

This valuable information sheds light onto many of the questions and issues faced by leakers across the UK and Ireland. Dr Schievink’s advice will also be of relevance to GPs and other medical professionals dealing with patients presenting with persistent daily headaches and other symptoms of intracranial hypotension.

You can view the Q&As online by clicking here or download them by clicking here.

New Factsheet – What is a CSF Leak?

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We’re pleased to announce the publication of the first in a series of CSFleak.info factsheets – What is a CSF Leak? – which can be downloaded via our downloads section or by clicking on the button below.

Our factsheets provide easy access to key facts and information; they are printable and can be taken with you when you meet with your GP. They are provided in good faith and following careful research, however they cannot be guaranteed error-free and are not a substitute for professional healthcare advice.

We’re looking for contributors to CSFleak.info

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As you may have noticed, while the bones of CSFleak.info site are now in place, a lot of content remains to be drafted and added. Our site is run on a purely voluntary basis and as most of us are current leakers, it all takes time.

So, if you’re a CSF leak sufferer, a family member or friend of a sufferer or a medical professional with experience of CSF leaks and intracranial hypotension, we’d love to hear from you and for your to contribution to this site.

While many of those involved have spinal leaks, we want this site to be relevant to cranial leakers as well, so if you have experience of a cranial leak, your input would be invaluable.

We can’t pay wages, but we know that any help you’re able to give will go a long way to helping leakers in the future.

Please contact us if you’d like to help out.